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Project Manager, Rare Diseases

Foundation for the National Institutes of Health
Bethesda, MD Full Time
POSTED ON 4/2/2025
AVAILABLE BEFORE 5/3/2025

The Foundation for the National Institutes of Health (FNIH) is seeking a Project Manager for Science Partnerships, Translational Science Rare Diseases Team to manage a large, multistakeholder public-private research collaborations focused on Adeno-Associated Virus (AAV) Gene Therapy across multiple rare diseases. Our research partnerships are made up of leading experts in the field from biopharmaceutical companies, healthcare not-for-profit and patient advocacy organizations, government agencies, and academic institutions. Positions at FNIH are an excellent way to grow your exposure beyond a single field or industry because the organization sits at the nexus of the partners listed above. Work will be conducted under the supervision of the Program Manager of rare diseases in a hybrid work environment, including virtual and at the FNIH offices located in North Bethesda, Maryland.


This is a non-research, administrative management position requiring a can-do attitude, excellent interpersonal and writing skills, a high level of organization, diplomacy, focus, and the ability to work under tight deadlines with strong personal and collaborative acumen in diverse and complex biomedical research environments. A background in cell and gene therapies, rare diseases, and/or managing drug development projects is preferred. The Project Manager will provide leadership in management of all aspects of the partnership.


What We Are Looking For:

  • An MS/PhD in a scientific/technical field or MBA and 3 years of relevant scientific project management work experience in biotech, pharmaceutical or health related organization is preferred
  • Experience with CDMO and/or CRO project coordination, timeline management, risk identification, and stakeholder interactions, preferred
  • Experience in regulatory science is a plus
  • Prior role in consulting or client-based environment is a plus
  • Prior role in nonprofit research environment is a plus
  • Familiarity working with large-scale scientific datasets is a plus
  • Familiarity with scientific data management processes, intellectual property rights and publication processes and procedures is a plus
  • Project Management Certification is a plus


*Note: Remote positions require travel to the office once per quarter for three days for structured team-building activities. In addition, some travel is required to relevant meetings and conferences.


At FNIH we are committed to building a diverse, inclusive and authentic workplace. If you are excited about this role and the work of the Foundation, but your experience doesn’t align perfectly with all the qualifications in the job description, we encourage you to apply, nonetheless. You may be just the right candidate for this or other roles at FNIH.

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