What are the responsibilities and job description for the Director, Patient Advocacy and Engagement position at Alnylam Pharmaceuticals?
This role is considered Hybrid.
While professional experience and qualifications are key for this role, make sure to check you have the preferable soft skills before applying if required.
Location :
Remote, West (United States)
Position Overview :
The Director, Patient Advocacy, US Medical TTR will play a critical role in driving patient-centric strategies and strengthening relationships with patient advocacy organizations across the US. Reporting to the Sr. Director, US Patient Advocacy TTR , the role will ensure alignment between patient advocacy efforts in the western half of the US and the broader US Medical Affairs strategy. The role will require a dynamic leader with strong interpersonal skills and a deep understanding of rare diseases, patient advocacy, and cross-functional collaboration.
Key Responsibilities :
- Strategic Leadership and Collaboration :
- Develop and execute the US patient advocacy strategy for the TTR (transthyretin-mediated) portfolio, ensuring alignment with the regional and global medical strategy.
- Serve as a member of the US Medical LT, contributing to strategic planning and decision-making processes.
- Partner with internal stakeholders, including Medical Affairs, Commercial, Market Access, and Public Affairs teams, to ensure a unified approach to patient advocacy efforts.
- Develop strategic collaborations between internal and external stakeholders in line with mutual goals to enhance care for patients.
- Enable patient input and engagement into regulatory and market access submissions.
- Support Alnylam's patient-focused culture collaborating closely with legal, compliance, and data privacy colleagues to ensure strict adherence to local codes and company policies.
- Patient Advocacy Engagement :
- Serve as the primary point of contact for national, regional, and local patient advocacy groups, fostering trusted relationships that support mutual goals.
- Identify and address unmet patient needs by facilitating programs, initiatives, and collaborations that enhance disease awareness, patient education, and access to treatment.
- Develop initiatives to enhance disease awareness and improve time to diagnosis, as well as educate the patient community so that they are empowered to actively engage with their healthcare provider in the management of their disease.
- Represent the organization at patient advocacy events, including conferences, meetings, and community forums, to strengthen external relationships.
- Alignment with Regional Strategy :
- Collaborate with regional medical and commercial colleagues to ensure patient advocacy activities are fully aligned with the broader regional strategy for TTR-related diseases.
- Lead the implementation of advocacy programs that are culturally and regionally appropriate, ensuring a positive impact at the national and local levels.
- Cross-Functional Partnership :
- Work closely with Commercial teams to ensure patient-centricity is integrated into brand and market access strategies.
- Partner with Medical Science Liaisons (MSLs) and other field teams to gather insights and facilitate interactions between patient advocacy groups and key stakeholders.
- Collaborate with the Public Affairs team to align advocacy initiatives with policy and communication strategies.
- Enhance understanding of the patient, caregiver, and associated communities across the Alnylam stakeholders to support strategic decision making that reflects the needs of the community.
- Provides support for other programs as required.
- Program Development and Execution :
- Lead the development of patient education materials, advocacy resources, and engagement plans in partnership with internal and external stakeholders.
- Monitor and evaluate the impact of patient advocacy initiatives, ensuring continuous improvement and alignment with organizational goals.
- Compliance and Governance :
- Ensure all patient advocacy activities comply with regulatory, legal, and ethical standards.
- Serve as a trusted advisor on patient advocacy-related matters, providing guidance to internal teams on compliance best practices.
Qualifications :
Experience :
Skills and Competencies :
Key Success Factors :
About Alnylam : Alnylam Pharmaceuticals (Nasdaq : ALNY) has led the translation of RNA interference (RNAi) into a whole new class of innovative medicines with the potential to transform the lives of people afflicted with rare and more prevalent diseases. Based on Nobel Prize-winning science, RNAi therapeutics represent a powerful, clinically validated approach to treating diseases at their genetic source by "interfering" with mRNA that cause or contribute to disease. Since our founding in 2002, Alnylam has led the RNAi Revolution and continues to turn scientific possibility into reality.
Our culture : Our people-first culture is guided by our core values : fiercely innovative, open culture, purposeful urgency, passion for excellence, and commitment to people, and these values influence how we work and the business decisions we make. Thanks to feedback from our employees over the years, we've been fortunate to be named a top employer around the world. Alnylam is extremely proud to have been recognized as the #1 Large Employer by Boston Globe Top Places to Work in 2023 for the third consecutive year, one of Science Magazine's Top Biopharma Employers, one of America's Most Responsible Companies for 2024 by Newsweek, a Fast Company Best Workplace for Innovators, and a Great Place to Work in Canada, France, Italy, Spain, Switzerland, and UK - among others.
At Alnylam, we commit to an inclusive recruitment process and equal employment opportunity. We are dedicated to building an environment where employees can feel that they belong, can bring their authentic selves to work, and achieve to their full potential. By empowering employees to embrace their unique differences at work, our business grows stronger with advanced and original thinking, allowing us to bring groundbreaking medicines to patients. Qualified applicants will receive consideration for employment without regard to their race, color, religion, age, sex, sexual orientation, gender identity or expression, national origin, ethnicity, marital status, protected veteran status, disability, or any other characteristics prohibited by law.
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