Remote Director of Engagement and Patient Advocacy

Job Title: Director, Patient Advocacy and Engagement

Location: United States

Job Type: Full-time, Remote

Seniority Level: Director

Position Overview

We are actively searching for a highly experienced Director to spearhead our Patient Advocacy and Engagement initiatives. In this pivotal role, you will be instrumental in promoting patient-centric strategies and fostering robust relationships with patient advocacy organizations nationwide. This position reports directly to the Senior Director of US Patient Advocacy.

Key Responsibilities

• Strategic Leadership and Collaboration:
• Formulate and implement a comprehensive US patient advocacy strategy, ensuring alignment with both regional and global medical initiatives.
• Contribute as a member of the US Medical Leadership Team, playing a key role in strategic planning and decision-making.
• Collaborate with internal teams, including Medical Affairs, Commercial, Market Access, and Public Affairs, to ensure a cohesive approach to advocacy efforts.
• Establish strategic partnerships between internal and external stakeholders to enhance patient care.
• Integrate patient insights and engagement into regulatory and market access submissions.
• Foster a patient-centered culture by closely collaborating with legal, compliance, and data privacy teams to adhere to regulations and company standards.
• Patient Advocacy Engagement:
• Act as the primary liaison for national, regional, and local patient advocacy organizations, nurturing trust-based relationships.
• Identify and address the unmet needs of patients through tailored programs and initiatives that promote disease awareness, education, and access to treatment.
• Develop initiatives aimed at improving disease awareness and facilitating timely diagnoses, empowering patients to engage proactively with healthcare providers.
• Represent the organization at relevant patient advocacy events to bolster external relationships.
• Alignment with Regional Strategy:
• Work with regional medical and commercial teams to ensure that advocacy activities synchronize with broader regional objectives.
• Lead the development and execution of culturally and regionally appropriate advocacy programs.
• Cross-Functional Partnership:
• Collaborate with Commercial teams to weave patient-centricity into brand and market access strategies.
• Partner with Medical Science Liaisons (MSLs) and field teams to gather insights and promote interactions between patient advocacy organizations and key stakeholders.
• Work alongside the Public Affairs team to align advocacy initiatives with policy and communication strategies.
• Enhance understanding of the patient, caregiver, and associated communities among stakeholders to inform strategic decisions.
• Program Development and Execution:
• Direct the creation of patient education materials, advocacy resources, and engagement plans in partnership with internal and external entities.
• Assess and monitor the effectiveness of patient advocacy initiatives, ensuring alignment with organizational objectives.
• Compliance and Governance:
• Ensure that all advocacy activities meet regulatory, legal, and ethical standards.
• Serve as a trusted advisor on patient advocacy matters, providing guidance on compliance best practices.
  

Qualifications

• Advanced degree in life sciences, public health, or a related field is preferred (PhD, PharmD, MD, or MBA is advantageous).
• Flexibility to travel approximately 30% of the time.
  
  

Experience

• Extensive experience within the biotech and pharmaceutical sectors.
• Over 8 years of experience specifically in patient advocacy, ideally within the biopharmaceutical field.
• Established expertise in rare diseases or conditions pertinent to TTR is strongly preferred; experience in cardiac diseases is also valued.
• Proven track record of leading impactful patient engagement programs at both national and regional levels.
  
  

Skills And Competencies

• Exceptional relationship-building abilities, capable of influencing and collaborating across diverse internal and external stakeholders.
• In-depth knowledge of the patient advocacy landscape, particularly related to rare diseases.
• Strategic thinker with the capability to translate complex strategies into executable plans.
• Proven budget management skills and the ability to excel in compliance-driven environments.
• Outstanding communication, presentation, and organizational talents.
  
  

Key Success Factors

• A passionate advocate for patients and caregivers, demonstrating empathy and a steadfast commitment to enhancing the patient experience.
• A collaborative team player with a proactive, solution-oriented approach.
• Strong business acumen with the ability to balance patient needs alongside organizational objectives.
• Capacity to thrive in a fast-paced, matrixed environment, skillfully prioritizing high-impact projects while maintaining a sense of purpose and execution.
  
  

About Us

We are a premier organization in the biotech and pharmaceutical sector, dedicated to transforming the lives of individuals affected by both rare and common diseases. Our culture is anchored by core values including fierce innovation, an open culture, purposeful urgency, a passion for excellence, and a commitment to people. We take pride in being recognized as a top employer and a great place to work.

We are committed to an inclusive recruitment process and equal employment opportunity. We strive to create an environment where employees feel a sense of belonging, can bring their authentic selves to work, and reach their full potential. By empowering employees to embrace their unique differences, we strengthen our business through innovative thinking, enabling us to deliver groundbreaking medicines to patients.

Employment Type: Full-Time