Volunteer: Office Help

Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.

1-3% of Turner Syndrome babies will survive birth

10-20% of all miscarriages are babies lost to Turner Syndrome

For every 2,000 females, one will be affected by Turner Syndrome

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Work locally (NJ) and serve globally

If you are eager to make a difference, this may be the opportunity for you!

The Turner Syndrome Foundation is seeking someone for a long-term volunteer position in our Hazlet office. The candidate will be oriented about the mission and trained to perform program assistant responsibilities that may include, but are not limited to, the following

• Preparing mailers
• Data entry
• Online research
• Answering and making phone calls
• Writing and replying to emails
  
  

Founded in 2009, The Turner Syndrome Foundation (TSF), a 501(c)3 non-profit advocacy organization, provides education, information, and support to advance this cause, reduce the age of diagnosis and improve care outcomes. Turner Syndrome Foundation is committed to the power of education to help remove all social and financial barriers providing every individual the dignity of good healthcare, education, and support. Information, programs, and resources are generally provided without patient or caregiver membership fees. TSF is primarily led by talented volunteers.

Complete this application

https //turnersyndromefoundation.org/volunteer_take_action/talent-application/

This is a volunteer opportunity provided by VolunteerMatch, in partnership with LinkedIn for Good.